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ALS Association roiled by infighting; these cystic fibrosis patients may finally get life-changing treatment

February 3, 2023
The falling out among the ALS Association and its chapters appears to stem from a reversal in fortunes. The ALS headquarters was, for awhile, flush with cash following the Ice Bucket Challenge fundraiser in 2014.
John Blanding/The Boston Globe via AP

STAT+ | Leading ALS advocacy group roiled by infighting over money and priorities

The ALS Association was accused in a lawsuit by more than a dozen chapters of "catastrophic leadership failures."

By Ed Silverman and Andrew Joseph


The FTC is finally ready take on health data leaks. The problem is bigger than GoodRx

The FTC's action against GoodRx was a first. But with the vast amounts of health data now shared online, it'll be far from the last. 

By Mohana Ravindranath


Opinion: The FDA is the right agency to regulate CBD products, but it needs help

The FDA is the best agency to regulate CBD products, but needs new tools to manage CBD risks separate from existing food and supplement rules.

By Rosalie Liccardo Pacula



Molly Ferguson for STAT

STAT+ | They were the 10% left out of life-changing treatments. Now these cystic fibrosis patients may finally get help

Vertex and other companies are starting to test treatments that could help the 10 percent of patients who were unaided by "modulator" drugs.

By Andrew Joseph


Opinion: I was laid off from a public health job. Trust me, tech layoffs are different

Layoffs in the tech sector are making headlines. Equally big cuts in the public health workforce have gone almost unnoticed.

By Katie D. Schenk


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