Breaking News

Hospitals sharing personal data, STAT Madness winner, & how tech helps build trust among LA's unhoused

April 4, 2023
Reporter, Morning Rounds Writer
Good morning. We have lots to tell you about: not-so-private personal data, bringing health care to unhoused people, and — drum roll — this year's STAT Madness winner and runner-up.

Health tech

Think your hospital keeps your personal info private? Think again

Hospitals in the U.S. promise to protect the details of their patients' medical care. But in practice, almost every one of them uses sophisticated data tools to track and share people's personal information as soon as users start clicking on their websites. A new study in Health Affairs found that 99% of U.S. hospitals employed online data trackers in 2021 that transmitted visitors' information to outside parties such as major tech companies, data brokers, and private equity firms.

What about HIPAA, you might ask? It doesn't apply when the activity takes place on hospital pages about depression, breast cancer, or Alzheimer's disease, rather than in patient portals. "If the user had logged in to these sites such that the trackers were on pages associated with their diagnosis … then it would be a violation of HIPAA without a doubt," Brad Malin of Vanderbilt University, who was not involved in the study, told STAT's Casey Ross. Read more.


science

A treatment for gum disease in people (and pets?) wins STAT Madness 

If people with the gum disease periodontitis one day no longer need painful cleanings to protect their oral health, they might want to thank this year's winners of STAT Madness. A New York University dentistry team prevailed in STAT's month-long, bracket-style celebration of biomedical research, scoring the most votes for developing a gel that blocks receptors for a metabolite called succinate, reducing bone loss and inflammation. Researcher Yuqi Guo has her cat in mind when it comes to the potential benefits. "Think about if the owner can just apply the gel at home to their pets." 

This year's runner-up is a team from the Institute of Systems Biology in Seattle. They discovered biomarkers that help predict long Covid. These include type 2 diabetes, SARS-CoV-2 RNA, or Epstein-Barr virus in a patient's bloodstream, as well as the presence of specific antibodies, called autoantibodies, that attack the body instead of invaders. STAT's Brittany Trang has more


Health

Living with: College life with a chronic illness is no joke, but 'Chronically Catherine' is laughing anyway

LIVING_WITH_0330

Photo illustration: Casey Shenery for STAT

USC student Catherine Ames is the author of "Chronically Catherine," a column for her college newspaper that has far exceeded her initial ambitions. Her regular dispatches about dating and making friends while managing chronic pain and finding a diagnosis have led to national connections. She recently spoke with STAT's Isabella Cueto about her experiences living with disability.

Where are you now with your diagnoses and treatment plan? 

I am what my doctor likes to call someone with SSRT: Some sort of rheumatic disease. So I like to call myself a question mark patient, of which there are so many. For insurance purposes, I have lupus.

What has kept you grounded?

Humor. My mom took me to every appointment. We'd been catapulted into the stratosphere of complex medicine and didn't know how to deal with it except for just laughing at how impossible all of this seemed (amidst lots of crying, obviously). 

Read the full interview



Closer Look

Building trust among LA's unhoused, one GPS tracker at a time

DSC02763-1Crystal Milner/STAT

Just the idea of wearing a location tracker makes many people feel uneasy, sparking fears of a further loss of privacy in our connected world. To persuade people who are homeless to accept a GPS tracker, worn on a lanyard around the neck, means earning their trust. In Los Angeles, a health care team is building relationships with unhoused people, using trackers that allow them to check up on patients periodically for routine visits or in case of medical emergency.

"It's reassuring that they use the trackers," a woman who introduced herself as Rockelle told STAT's Mohana Ravindranath about the health care team, which helped her get needed medication and secure a place on a housing waitlist. "We don't have much trust with unfamiliar things, but I feel like if [they're] patient enough to go out on a limb for us, we'll see that it's genuine." Read more.


health

'Staggering': 1 in 6 people face infertility

Around the world, one in six people are affected by infertility over their lifetimes, a statistic that Pascale Allotey, director of sexual and reproductive health and research at WHO, called "staggering" at a news conference yesterday. The first new estimates in 10 years were based on 133 studies through 2021. More research is needed to determine how infertility rates may have changed over time, and for whom, but disparities in access to treatment, including IVF, are undisputed.

Given the prevalence of infertility and the high costs of procedures like IVF, the report calls for universal health coverage of infertility treatments. Many European countries, as well as Morocco (where fertility treatment is available in the public sector), and Indonesia (where it's part of primary care) are already leading the way, WHO said. STAT's Theresa Gaffney has more.


health

Study ties early menopause and later timing of hormone therapy to Alzheimer's risk

More women than men develop Alzheimer's disease in old age, but it may not be just because they live longer: Women also have more tau tangles in their brains, proteins consistent with an Alzheimer's diagnosis. A new study in JAMA Neurology suggests there's a link between early menopause (before age 45), the timing of hormone therapy, and those tau deposits. Women have been wary of hormone therapy to ease troubling menopause symptoms since the landmark Women's Health Initiative study was halted in 2002 after finding higher risks, including cancer and dementia, in women over 65, but more recent guidelines say the therapy is safe closer to menopause onset. 

Researchers in the new trial reiterate the role of timing. After analyzing PET scans for 292 cognitively unimpaired adults (193 female, 99 male), they found the highest levels of tau in hormone therapy users with a long delay between menopause onset and starting hormone therapy. Caveats: the study was small and too short to say who eventually developed dementia.


More around STAT
Check out more exclusive coverage with a STAT+ subscription
Read premium in-depth biotech, pharma, policy, and life science coverage and analysis with all of our STAT+ articles.

What we're reading

  • Pharmacists are burning out. Patients are feeling the effects, Washington Post

  • Building a better brain through music, dance and poetry, NPR

  • Vertex, CRISPR Therapeutics inch ahead of rival for genetic fix to sickle cell disease, STAT
  • Long COVID exercise trials proposed by NIH raise alarm, Nature

  • FTC tells Illumina to divest Grail, boosting Icahn's case, STAT

Thanks for reading! More tomorrow,


Enjoying Morning Rounds? Tell us about your experience
Continue reading the latest health & science news with the STAT app
Download on the App Store or get it on Google Play
STAT
STAT, 1 Exchange Place, Boston, MA
©2023, All Rights Reserved.

No comments