Closer Look
Living with paralysis: 'People make assumptions about you'
Photo illustration: Casey Shenery for STAT
Nikki Saltzburg (above) has been paralyzed from the waist down almost her whole life. The 45-year-old staff psychologist at Florida Atlantic University was injured by a series of medical errors, including a faulty diagnosis and a medication-induced blood clot. She now has a stoma to divert urine that she calls Freddy, "because it looks like an alien to me, like Freddy Krueger." She recently spoke with STAT's Simar Bajaj about navigating the health care system as a disabled person:
How has health care been challenging?
Doctors often assume that I'm on disability, assume I'm Medicare or Medicaid. I work full time, I have a Ph.D., I have a family that I'm supporting.
What other assumptions do you run into?
When you have a disability, people make assumptions about you, and they make judgments about your character and your abilities. That's why it's always been personally important to me to be independent, as independent as I can be, and prove those assumptions wrong.
Read the full interview.
pandemic
For patients with cancer, the risk of severe Covid is at its lowest since 2020
In the spring of 2021, as vaccine euphoria was sweeping a world hopeful Covid might be in the rearview mirror, people with cancer or other conditions that lower immunity and weaken vaccine response felt left behind. As one person told me then, "It's not over yet for patients like me." New research from the U.K. paints a brighter picture, tracing more recent SARS-CoV-2 variants to less severe effects for patients with cancer, thanks also to vaccines, antivirals, and monoclonal antibodies.
Hospitalization rates for Covid-infected cancer patients fell from 31% in early 2021 to 7% in 2022 and death rates dropped from 21% to 3%. Still, cancer patients face twice the risk of bad outcomes as other people. "Patients with cancer must therefore be empowered to live more normal lives, to see loved ones and families, while also being safeguarded with expanded measures to reduce the risk of transmission," the authors write in Scientific Reports.
academia
Opinion: How to solve the Marc Tessier-Lavigne problem
Only four paragraphs in a 95-page report on Marc Tessier-Lavigne's fall from grace mention lab culture. The celebrated neuroscientist resigned from Stanford's presidency — but not his lab leadership — for failing to take sufficient steps to correct data manipulation in scientific papers that he co-authored. Lab culture was not what it should be, the report said, where multiple people manipulated data and there were "oversights" in amending the scientific record.
"Those paragraphs flag important issues that more of us who work in universities should heed," C.K. Gunsalus of the Grainger College of Engineering at the University of Illinois Urbana-Champaign points out in a STAT First Opinion. There's a disturbing dynamic of hypercompetiton, in which lab members are divided into winners and losers, based on their experimental results. "Research excellence is about more than what is achieved; it also encompasses how work is done, and by whom," she writes. Read more.
On this week's "First Opinion Podcast," editor Torie Bosch speaks with health professionals Stephanie Edmonds and Ginny Ryan about why they think physicians should let patients call them by their first names. Listen here.
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