Staff push for fixes to the 988 hotline; custom gene therapy hints at new path to treat rare diseases

The national mental health hotline is still working on securing funding and getting resources and response teams to people who need them.

July 12, 2023 Check out STAT+

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Molly Ferguson for STAT One year into 988 hotline, staff push for fixes to ambitious new system The national mental health hotline system is still working on securing funding and getting resources and response teams to people who need them. By Theresa Gaffney A young girl's custom gene therapy hints at a framework for tailored rare disease treatments Individualized medicines, are often made to treat debilitating genetic conditions that are too rare to garner interest from pharma companies. By Bree Iskandar STAT+ | How are insurers handling the Alzheimer's drug Leqembi and related scans? As a condition of coverage, Medicare also rolled out a new patient registry to collect more information from physicians prescribing Leqembi. By Rachel Cohrs Jonathan Armstrong/Wellcome Opinion: Sickle cell cures are coming. African children can't be left behind Rolling out a new generation of sickle cell cures without a strategy to get them to those with the greatest need is not acceptable. By Jayasree K. Iyer STAT+ | Europe issues maximum antitrust fine of $475 million to Illumina over Grail deal The fine comes after Illumina closed the deal to purchase Grail before getting regulatory clearance. By Andrew Joseph STAT+ | How to 'break the logjam'? Economists pitch a plan to curb dire drug shortages The U.S. continues to see shortages of medicines. Marta Wosińka explains how changes to hospital purchasing and drug facilities could help. By Ed Silverman Listen: One Duchenne patient's bittersweet hope for new treatment "For the older boys, we're running up against the clock a little bit with what we're able to do," says Hawken Miller, who has Duchenne. By Torie Bosch

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