Breaking News

Rare disease patients caught in Trump crackdown on foreign grant awards

August 6, 2025
Snag this deal: Save 50% off a STAT+ annual subscription and get unlimited access to our award-winning stories, premium data tools, event discounts, and more.
Ellyn Kodroff, outside of her home in Highland Park, Ill., founded the CURED Foundation after her daughter Jori was diagnosed with  a rare disease.
Kayana Szymczak for STAT

STAT+ | Rare disease patients caught in Trump crackdown on foreign grant awards

In studies reliant on global partners because of the small number of patients, NIH overseas funding cuts turn patients into collateral damage

By Megan Molteni


STAT+ | Trump is threatening health care giants with the weight of the federal government. It's working — sometimes

Trump administration health officials are skipping new laws and regulations in favor of voluntary compliance mixed with threats. Results are mixed.

By Daniel Payne, Chelsea Cirruzzo, and Sarah Todd


STAT+ | Health secretary RFK Jr. shuts door on U.S. investment in mRNA vaccine research

Technology used during Covid pandemic long criticized by anti-vaxxers despite extensive safety data. Kennedy says he's "investing in better solutions."

By Helen Branswell



The salt flats in Uyuni, Bolivia, are a prime source of lithium.
Aizar RALDES / AFP

Lithium, a treatment for bipolar disorders, might be a key to Alzheimer's disease

A study in mice finds that lithium depletion in the brain may be one of the earliest triggers of Alzheimer's and offers a potential path for treatment.

By Marissa Russo


STAT+ | Sarepta hired a Trump-connected firm to lobby on Duchenne treatment

The biotech firm added the lobbying firm after the death of a patient who received the Duchenne muscular dystrophy treatment Elevidys.

By John Wilkerson


Opinion: Trump deserves the Nobel Peace Prize for Operation Warp Speed's global impact

NYU's Marc Siegel says in a First Opinion essay that one way to shift the debate on mRNA vaccines is to give Trump the Nobel Prize for Operation Warp Speed.

By Marc Siegel


Adobe

Opinion: Steve Forbes: CMS must cover FDA-approved medical devices and treatments

Aligning CMS reimbursement with FDA approvals would reintroduce predictability and practicality into a system that has for too long been short on both.

By Steve Forbes


Opinion: Cancer care is in crisis — but I've seen what hope can do

Amid devastating research cuts, oncologists need a hope that's laced with determination and innovation through action.

By Fumiko Chino


More around STAT
Check out more exclusive coverage with a STAT+ subscription
Read premium in-depth biotech, pharma, policy, and life science coverage and analysis with all of our STAT+ articles.

Enjoying Daily Recap? Tell us about your experience
Continue reading the latest health & science news with the STAT app
Download on the App Store or get it on Google Play
STAT
STAT, 1 Exchange Place, Boston, MA
©2025, All Rights Reserved.

No comments