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A mysterious illness and a former CDC director's warning

September 8, 2025
isabella-avatar-teal
Chronic Disease Reporter

Good morning. Isa here, filling in. If last week was any indication, September will be a newsy girl. Cut to: STAT newsroom (but with women and better working conditions). Let's get to it.

health

A mysterious problem leads to 'maddening pilgrimages'

Screenshot 2025-09-07 at 4.40.32 PM

Emily Kask for STAT

Some 700,000 Americans get tubal sterilizations each year, making it one of the most common forms of female contraception. Afterwards, an uncounted subset report a debilitating set of symptoms known as post-tubal ligation syndrome. The women describe severe pain, giant blood clots and other symptoms. But often, their doctors dismiss them, saying the syndrome doesn't exist.

That sends sufferers on what reporter Eric Boodman calls "maddening pilgrimages" for recognition and relief. Some end up seeking sterilization-reversal surgery. Others, faced with skepticism and conflicting data, end up distrusting much of what they previously believed about mainstream medicine. Read Eric's fascinating story about the tug-of-war facing this patient community.


cdc

CDC's website can't be fully trusted, former director says

Not long ago, Rochelle Walensky directed the Centers for Disease Control and Prevention, navigating the Covid pandemic and facing critiques over the agency's communication of pressing health issues. Now, she's warning that the CDC's website under health secretary Robert F. Kennedy Jr. might not be fully accurate on vaccines, STAT's Elizabeth Cooney reports.

"The vaccine information on the CDC is not necessarily that of the subject matter experts or the CDC," Walensky said in a news conference in Boston Friday, while noting that other information on the website remained reliable. She recommended people look elsewhere, like to professional medical societies, for vaccine guidance.

Walensky was one of nine former directors who called for Kennedy's resignation in a New York Times op-ed last week. Her comments come at a moment when Kennedy is steering the nation's health agenda further toward his trademark vaccine skepticism — and when fewer career vaccine scientists remain at the CDC.


covid

FDA to investigate reports of Covid vaccine deaths in kids

Case in point: A new Covid vaccine study unveiled by Food and Drug Administration Commissioner Marty Makary on Friday. STAT's Lizzy Lawrence has the details: The agency will conduct an "intense investigation" into whether Covid-19 vaccines have caused deaths in healthy children, Makary said on CNN. He highlighted as evidence reports submitted to the FDA's vaccine safety database, which can be submitted by anyone and do not prove a vaccine caused the adverse event.

The FDA will look more deeply into those reports and release findings in coming weeks, Makary said. It's worth reiterating that hundreds of millions of people in the U.S. have received Covid vaccines, and the only safety signal that has emerged so far is a rare risk of heart inflammation in young men who receive the shots. As Lizzy writes: "There is no evidence that the vaccines in use now cause any other major safety risks, including pediatric deaths. "

Read more about what the data show, and what Makary has previously said about this issue.



children

The effects of high blood pressure, six decades later

A renewed focus on children's health has many asking what can be done to set the next generations up for success. Here's one theme worth paying attention to: Blood pressure in those early years.

A new analysis of 37,000 people, presented at an American Heart Association convening yesterday, suggests high blood pressure at age 7 is associated with a higher risk of premature death from cardiovascular disease. To probe the connection, researchers linked health data from a cohort of American children born in the late 1950s to mid-60s to death data in 2016. They also looked at siblings to see if the associations persisted. The study only included Black and white children, and childhood blood pressure was based on one measurement, so those limitations should be considered. Even so, there is strong evidence that elevated blood pressure in youth leads to worse cardiovascular health, so early intervention is the name of the game.


Ai

Beyond 'Dr. Google': Patients are using chatbots for medical insights

Anyone online in 2025 is probably negotiating their relationship with artificial intelligence, and patients are no exception. Increasingly, people are using chatbots and other generative AI tools to "organize thoughts, explore outcomes, and rehearse how they'll describe what they're feeling" before a doctor's appointment, clinical psychologist Harvey Lieberman writes in a new First Opinion.

That's a challenge — and an opportunity. Healthcare providers should build off patients' AI-generated narratives and fill in the gaps, since large language models' diagnostic accuracy is patchy at best, according to early data on real-world use. "We should be teaching people how to build personal health narratives — drafts that are clear but revisable, reflective but not prematurely certain," Lieberman writes.


the more you know

One big number: 900,000

That's about how many diapers clinicians at the Upstate Pediatric and Adolescent Center in Syracuse, N.Y., estimate they've distributed through their diaper bank.

When one thinks of health disparities, many things come to mind — unreliable transportation, food insecurity, polluted air, etc. — but diapers don't often make that list. In Syracuse, though, advocates see diaper access as a key "social driver of health that is not addressed" by government safety nets.

Nearly 46% of U.S. families don't have the money to change their children's diapers "as often as necessary," the Syracuse team writes in a New England Journal of Medicine Perspective. In their patient population, where many families live in high-poverty areas, that number is about 62%. So patients receive 50 diapers per child per month. With that, a majority of caregivers reported they could buy more food or pay another bill, according to a 2023 survey.


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What we're reading

  • A question of conflicts at America's top pediatrician association, Undark
  • WHO declares end of mpox global emergency, STAT
  • He built Michigan's Medicaid work requirement system. Now he's warning other states, KFF
  • Bipartisan bill to extend ACA tax credits offers hope for a deal, STAT
  • Dividends from death, Science
  • David Baltimore, Nobel Prize winner and early AIDS researcher, has died at 87, New York Times
  • I'm one of the Ph.D. students caught up in the cancelation of 'diversity' grants. I'm heartbroken, STAT

Thanks for reading! 
Isabella

Timmy


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